Sunday, February 12, 2017

What if...?

Our son, Baker, was born exactly three weeks ago.  He is perfect in so many ways, and absolutely a perfect addition to our family.
But, if you look at him, you'll probably notice one of his imperfections before anything else.  Baker has one (if not more) large hemangioma that is currently on his left eye and nose.  When he was born, his complexion was even and there was no sign of any type of red mark.  At about ten days old, we started to notice this red birthmark (we assumed) forming on the bridge of his nose.  Since then, it has continued to grow and we believe he has one around his left ear and one on his bottom lip as well.  His pediatrician, and several others, believe this is a hemangioma, which is a type of benign tumor seen in about 10% of infants.  The tumor appears as a red mark; it grows, darkens, and swells until about six months old.  At that point, growth stops and the tumor slowly shrinks and eventually disappears over the next few of years. This would be totally fine and acceptable except for the location of Baker's hemangioma(s).  Where his are located, as soon as they start to swell, they could impact the development and function of his vision, airways, and hearing.  We are heading to pediatric specialists this week to get a treatment plan in place.
As you can imagine, this unexpected news has been stressful for our family.  Just in the past week as we have researched and contacted doctors and specialists, we can't help but have questions.  We could constantly ask, "What if he didn't have this condition?"  Right, life would be a lot easier and we would just cruise along without much hardship.  But, he does have it.  So we've decided to ask "What if we didn't have great health insurance?" "What if there weren't people who dedicated years of their lives to studying things like pediatric dermatology or pediatric opthamology?" "What if we lived far from any of the specialists that we need to see?" "What if we didn't have love coming from great people in our lives?" "What if we both worked full time and would need to take time off to care for Baker?" It's tough to feel down about yourself (or your son) when you consider all of that. We may have a difficult circumstance, but we have all of the tools we need to overcome it.
Statistically, hemangiomas are the most common in females, caucasians, and babies that were born prematurely.  It just so happens that Baker doesn't fit into any of those categories. So. we must all really need to learn something from this.

No comments:

Post a Comment